Life is all about perspective

Yesterday I had a great day. I was so happy and excited. The reason was this thing that would make me so miserable just two years ago. I’ve spend the whole day thinking about how life is made of perspective and how the same things can bring different feelings.

I had appointment with Gabi in her new school. It is school for special needs children. When we got inside, the school was full of children with various needs. Mobility impaired, intellectually impaired, both of that, etc. Also, in the hallway you can see all kind of equipment, like wheelchairs, walkers, stander, bicycles, special chairs, and so on. I found this image beautiful. Gabi was so happy and excited and I was so happy and excited because of her. She is going to school. What a wonderful thing.

After we came back from school, I’ve remembered myself just two years ago. At that time, Gabi was healthy child with “just” epilepsy that was hard to control, but she was beautiful, healthy and normal little girl. I loved the way she talked and think, the way she played and learned. After the meeting with our doctor, because of the antiepileptic meds that weren’t helping, I went home crying. I was miserable, hysteric, I’ve felt like world was spinning and I couldn’t breath. The reason was because doctor said that seizures are persistent and that they will maybe affect her thinking and learning in the future and that she will maybe have problems in school because of that and that I should consider maybe ask for more individual program for her when the school time comes. I was devastated. I felt ashamed, I felt like I was the worst mom in the world. Just think about my daughter and her being anything different that “usual” or “normal” child was something I couldn’t deal with.

When I remember that feeling, I am not sure should I laugh or cry. I would definitely give everything I have that someone tells me that now.

But now I know what diagnosis she has and what to expect. I know that she wouldn’t survive past teens and that we are so lucky that she is still in condition that she will actually go to school. That I have opportunity to see my daughter get into the school bus and go to school. I am so happy because of that now and I was so miserable back then.

Life is definitely about perspective. Same things have different feeling, different taste. We humans are so more adaptive than we think we are. We are survivors. Us moms, we are the warriors. It is in every one of us from the moment we have our children. We can survive enormous pain and be happy when we win little battles. We can change the perspective and live with hope and strength when everything around us is falling apart.

So, cheers for Gabi’s school. We are happy.

 

Author: sarabajlo

Hi, my name is Sara. I am from Croatia, Europe, but I am living in Hamburg, Germany. I am mom of two and third on her way (yeah, it's baby girls ). My daughter Gabriela is 7 and half years old and she suffers from fatal neurodegenerative disease, called Batten's disease. You will hear a lot about it in my personal site. My son Vigo is 2y old, beautiful and healthy toddler. Baby girl Mara is on her way. We are expecting her in November, 2017 :) Raising kids is one of mine specialities :)

3 thoughts on “Life is all about perspective”

  1. This really touched my heart. I almost lost my now 9-year-old son, Jy, at the end of 2015. He had encephalitis and Guillan-Barre Syndrome after receiving the flu mist. He was in a coma for three weeks and quadriplegic. He still struggles from some of the side-effects from the encephalitis. He is in partial special ed at school. His situation has really put many things in my life into perspective. Thank you for sharing your story with us. Much love to you and your family. Congrats on baby #3. ❤️​

    Like

    1. Thank you 🙂 And I am sorry that you need to deal with that. I believe that our children are teaching us to see and feel life in a way that we never expected and it is a gift. Love to you and your family ❤

      Liked by 1 person

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s